Sunday, October 27, 2013

Change 3 Challenge/ Prader-Willi Syndrome One Small Step

Saturday was so awesome for our family. It isn't every day that we can meet up with other families that have children with Prader-Willi Syndrome. Sometimes it can be really isolating as people really are not familiar with PWS and quite honestly very few friends/family (in our case) seem to care enough to educate themselves. Yes, people as a whole are very accepting of A~man but quite honestly I would love for a couple to actually ask about it! (if you are my local friend and reading this you know you are an exception to the rule ;) Most people just assume he "just" has autism. A few families we have met within the year were at the first walk we went to, and then the second one this past spring was LJ's Foundation walk. A~man in particular LOVES the little ones with PWS...and their siblings. He is a baby/toddler magnet.

It was a 5K with a fun run for the small kids, and a 1 mile run. I am happy to say we all did the 5K but we did come in last, lol, still trying to figure that one out but my guess is most of the people behind us must have not went till the end as we were not going slow! It was 80's themed and both of my men were sporting a mullet, Z a side pony tail and we also had leg warmers.

Afterwards we went out to lunch with a couple of families...where A~man had a melt down. Which is unusual as a whole as this doesn't normally happen when we eat out. He does best at sit down restaurants and this was Subway and it seems places where he has to decide so many possibilities (toppings, drinks) is overwhelming. But it did not last long. I wish events like this happened more often than once or twice a year!

Onto my Change 3 Challenge-

1. (going to bed before midnight) has been a total bomb. I will say though that most nights I am getting in bed before steps?

2. (drink a gallon of water a day) This has been the one I have had the most progress with. Some days it is only 7 glasses but that is a big improvement.Yesterday after the walk? I realized I had only drank two cups of coffee and a coke (which is a rare thing..I do not drink soda usually) up until 4 pm. I felt horrible physically! That made me really realize how much better I have been feeling when I stay hydrated. I have also noticed the rest of the family drinking more water too!

3. (everyday for the month of October I am going to either giveaway, throwaway, or sell 30 items every day) While that has not been a total bomb...I notice a big difference...I think think 30 items was a bit high. (for me) There are only a handful of days left in the month so they will be packed with cleaning as my inlaws are making their first trip down, (moving here) in a week!

What else are we doing? School of course. It seems like it never fails...I plan structure at the beginning of our year and we always go towards unschooling...except for our morning lessons online. It works for us to take a plant lesson we learn on the computer and then apply it when we go on our daily nature walks. Oh, and we are taking advantage of those days it has been warm enough to hike/walk...I know the cold is not far away!!


  1. I am so glad you guys had a great time! I loved your costumes, they were very rad!
    I think any progress forward is something to celebrate with your goals! Keep on pressing forward with your goals. You can do it!
    I am the same way with school too Joy! I think thats is one of the nice things about homeschooling is we do have that freedom!

  2. Love, LOVE the mullets, lol! Thanks for sharing your wonderful photos! :)


  3. Congratulations on your walk...bravo! Such a big accomplishment for all of you!
    BTW...I love your blog photo. Did you take it?

    1. Thanks! It was fun. Yes, I took the photo at one of our very favorite local places to hike. :)

    2. I knew take such lovely photos! It's a beauty.