Thursday, January 29, 2009

My girl

These are a couple pictures of Z-girl gosh....3 years ago when she was in the play "Midsummer Night's Dream" I found some paper copies in my desk drawer today. I lost the copies off my computer last fall when my laptop crashed. (fortunately most of my pictures were on my main computer) They are not real clear but since taking them I've wanted to do something artsy with them. I have a few other similiar ones and was thinking of a collage.

Not sure why it's cutting off the side of some pictures?



Monday, January 26, 2009

My son the flirt

Oh I thought of something I do not want to forget. Tonight before cubscouts we went to the best local hotdog place for a quick dinner. (a rare treat;) A mom and her daughter sat down. The daughter was probably 13 and very pretty. A-man said " do I know her?" and in his normal fashion LOL ended up chatting with the girl and her mom. (he LOVES pretty girls Lord help me;) I'm not sure where/how but he was convinced that he knew her. He kept asking the mom (who was VERY sweet) if she (the mom) did her hair....and all kinds of questions. He was obviously quite smitten. One of the things I love best about my ds is he doesn't see disabilites/differences in others....he only sees their beauty. This beautiful young lady has Downs syndrome and it made her day to have a young admirer.

Prader-willi syndrome

I really want to get into the habit of blogging everyday but I cannot think of anything really creative right now. So...I thought I would do a blog on my sons disability. Prader-willi syndrome. I could type up all the facts (here are the facts on it but I would rather explain how it affects our family.

If the average person looked at our son....and knew we counted his calories...they would think we were crazy. He is tall (thanks to his genetics and growth hormones) and is a good weight. He could be slimmer as he is in the 75%+ for weight...but he is for height too and looks just right to me. Before bed every night I have to look through his pockets and through his drawers as even with almost constant supervision he manages to hide things. Cough drops, his dads snack cakes, the rare candy we have in the house, food out of the pantry. He will find the opportunity and hide it in his room for later. We also have to keep all medicines out of reach as will try to consume anything he thinks might taste good. The GENIUS who decided to make Pinesol in colors that look like mouthwash should be shot. LOL. Years ago I walked into the bathroom when he was going to the potty just in time to keep him from gargling pinesol. Needless to say all cleaning supplies, toothpaste, mouthwash is out of his reach.

He also has major impulse control issues. I'm not sure if that is PWS or ADHD or both rolled up into one. He can say some REALLY bad things to his sister and other children when my husband or I are not within earshot. I'm not sure where he gets this as we do not watch tv and we are very careful of the videos he watches.

There's more challenges but I will save that for another blog. Instead I want to describe the positive characteristics of our son. He has made my husband, daughter, and I more patient than we could ever be. He is Mr PERSONALITY. He has been this way before he could talk. (3yrs old) When we go to stores and restaurants EVERYONE knows him...think CHEERS. "Hey it's A-MAN!!" I'm a normally shy person and he has caused us to meet and know more people than I could ever imagine. At restaurants it is a norm for waitresses, store owners, other customers to sit down at our table just so they can be blessed by talking to him.

I could type on and but I will save it for another day. Here is a picture from today of the hubby and A-man.

Sunday, January 25, 2009

Jean Rag Quilt

This is the first large quilt I have ever attempted. I have made baby/child quilts.(simple ones) Originally I wanted it a lot bigger but....I am out of jeans! These are 6 inch squares. If I've done my math right this will be about 5 1/2 feet square. This will be for camping and for picnics.

I Am

"I am only one; but still I am one. I cannot do everything, but still I can do something. I will not refuse to do the something I can do."-Helen Keller

I love these words and they mean so much to me. I first saw them in one of our favorite sandwich shops. I guess if I had a motto this is what it would be. Sometimes I get so overwhelmed with everything that I should be doing that I can not narrow it down to doing one thing at a time. Once I do focuss myself on things of most importance life goes so much smoother and is more productive.