Tuesday, October 1, 2013

Sometimes I Hate PWS!

A 14 year old child who was in the beginning of a MAD diet passed away this past week due to the development of diabetic ketoacidosis after discontinuation of her medications. While it was not the MAD diet in isolation that caused the death, there are some important points that need to be made here for those of you who are implementing or considering this diet. Stopping these medications without blood testing to prove whether or not they are necessary, and without consulting with medical professionals, can be dangerous, and even fatal. Some supplements can be toxic if given when not necessary or in too high of doses. Lastly, the MAD and ketogenic diet may create symptoms that could be signs of the development of more serious medical conditions (increased thirst, increased urination, fatigue) so routine blood testing needs to be done for children who are placed on this diet. Please be aware that the posts on this website are not from medical doctors and therefore, the advice given here should always be discussed with medical professionals before stopping medications or starting new supplements."

Jennifer Miller

I also want to add this link from the foundation of PWS Research. 

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