Sunday, November 18, 2012


Such a simple word huh? Yet sometimes I know as a special needs parent I can take the stress of the week and focus on it, instead of finding things to be thankful about. I REALLY try during these stressful times to find something to be thankful for. I think taking the time to do this is a necessity when you are dealing with special needs learning and special needs parenting. 

Last week was not good. It started out with me waking up in the middle of the night with what must have been food poisoning. That same day A~man had a med check appointment to get new prescriptions on his meds. Unfortunately due to circumstances I'm still scratching my head about, the pharmacy would not fill one of the medicines (they said they were waiting for approval), which resulted in him missing two days worth of a particular med.

What is A~man like without medicine? He is like a squirrel that has drank espresso. I do not know any other way to describe it. He bounces here, he bounces there, and he talks a mile a minute. (and people that know him already think he talks a lot!) It. Is. Exhausting. The energy that it takes for the rest of us to keep up with that amount of energy is incomprehensible unless you experience it. Yet, when he gets like this he is hilarious!! We went to the mall to walk off some of that energy, as it was too cold outside, and guess who we saw?

Yes, we saw the jolly man himself getting the mall ready for his visit after Thanksgiving. Now A~man loves Santa, well this Santa in particular (heehee I even found his picture with a google search ;) This Santa came to our house when the kids were toddlers, before bed, to visit on Christmas Eve. This Santa knows both kids by name every time we walk by him in the mall. Now Z~girl knows about Santa (although she still loves this guy) but I figured A~man would always believe in Santa. After A~man thoroughly chewed Santa out for setting up Christmas decor before Thanksgiving (he HATES that), he asked about the other Santa that is sometimes there when the real one needs a break. He asked him *snicker* if the other Santa was passed out. The hubby and I just looked at each other confused but I figured out he was asking if the other Santa had passed away. He explained, "that Santa last year looked awfully old!". The real Santa was trying to keep a straight face. As we walked off A~man said words I never thought I would hear him say- I wonder what that guy's real name is! It was one of those times you just really had to be there but it was hilarious...the whole Santa experience that day was a riot. 

There were plenty of not so funny moments last week too. With him being so keyed up he was on edge and close to a meltdown very easily. We also had to watch him more carefully as when he gets a certain look in his eye (that thankfully I haven't seen in months) he can do dangerous things. He will also go out of his way to do things to get in trouble. Yet, we trudged on and no one got hurt. LOL It broke my heart at the end of one day after an event (last week is a blur) he started crying. He was practically begging us to go to the pharmacy as he wanted his medicine! Fortunately we were able to get him it later that day.

He is back to his "normal" A~man self...well the version that has more self control, focus and is a little less bouncy. I miss the extreme humor he has with out med but he is much happier overall when he feels in control of himself.

Tonight we went to our second Thanksgiving Feast that was at our church. I do not think we would have been able to take him if we did not get his prescription refilled before the weekend. As always we told him we would get him a little bit of everything (I'm talking a tablespoon of many choices) plus a slice of pumpkin pie. It went so well. Following the meal was a talent show and I was surprised that it didn't bother him that there was food remaining on the tables while we watched the show. 

Z~girl played four songs on her violin.

This is A~man and his buddy T playing the Shofar . I am so thankful for this church. They are very accepting of differences. The variety of different kinds of people here is really neat. I have seen people (that I assume may have been homeless) come off the street to attend the service. It's the kind of church that you can just come as you are. 

Our Thanksgiving celebration at home is always very low key. We will take off Wed, Thurs, and Friday from "school work". (although we might fill up some of our down time with some learning activities. We have turkey and a few other special foods but we have learned keeping the meal part like any other meal at home helps the Prader-willi syndrome anxiety that can come with this holiday. We normally go for a hike after our meal and then go to the movies. 

I encourage anyone reading this to take the time during stressful circumstances and find something to smile about and find something to laugh about. I have found that humor makes it that much easier to find something to be thankful about.

1 comment:

  1. Awwww. I have to tell you that I am extremely thankful that you share your amazing life with the world at large. I know that I am so much the better for it!