Thursday, June 25, 2009

oh what a night....

I will only put this in my where else I go online...although I have awesome online friends. Unless a person has been around such things as mental illness, developmental disabilities, autism, prader-willi stories would not mean what they do.

Tonight we had a date and hubby arranged for someone else to stay with the young man in our rental. That halfway fell through as the lady came there sick with absessed teeth and hubby sent her home when we got home from dinner. Before that and before coming home we got a call from the babysitter. She is a mature lady that has worked in childcare for eons that likes to sit for us on occasion. make a LONG story short...somewhere A-man found matches (not sure where...we do not smoke regularly....maybe in a camping bag?) he lit it. He burnt himself and then showed the sitter. Well she was thinking that she only saw the last two matches in the match book so she goes looking for the rest in his room. All hell broke loose. Not sure if it was because she was moving his stuff or what but he became escalated to a level that hubby and I only see once in a blue moon. He became violent. He doesn't do that with us. She had to restrain him (it was safely) as he was in danger to himself and her...she is a tiny lady.

Needless to say no daycamp tomorrow. His worker there is new and I"m not going to chance it escalating to that level again and him getting kicked out or hurting someone.

I'm thinking of maybe two possibilities of triggers for this behavior. He takes med for ADHD and for OCD issues. Last week the dev ped increased his OCD meds....although we have been doing it gradually. It is a med that could have an odd affect. Also today he had chocolate...and quite a bit. GEESH I am normally such a hard butt about food issues...and the prader-willi syndrome. At 4H they ahd this yummy chocolate dessert and I couldn't say no....I thought awww just this once. IN the past he has had bad reactions to chocolate...what was I thinking???? I have boycotted RED 40 for similiar reactions...I guess it's time to do the same with chocolate and treat it like an allergy.

I beleive the Lord is shaping me to become what he wants....but sometimes it's a painful process...


  1. ((hug)) I'm sorry your date night turned out this way. I'm sure A doesn't want to feel out of control either, so a big ((hug)) for your sweet boy too.

  2. oh hon,
    I am sorry you all had to deal with this........sigh.....

    I get it.and I know how much you love that little guy.I am glad she knew what to do and how to restrain him safely.......

    hoping you can work it out.

    gentle aussie hugs

  3. Can't seem to find another way to contact you except through a comment, so...

    I noticed over at Jelly Wares that you were interested in her wash cloth swap. I just got a nice note from her saying no US swappers this time, so I thought perhaps we could just swap with each other.

    If you are interested, please send me a private email at HookedOnNeedles [at] gmail . com



  4. Thanks for the comment on the swap but unfortunately I'm just going to make it aa AUS only swap for the first one... Keep popping by though as we might make the next one an international one...

    Take Care
    Jodie :)