I'm tired. I'm always tired. Today especially so. It was my own doing....or undoing...
Today was an appointment with A~mans Dev Ped. This guy is 'SUPPOSIDLY" an expert in Prader-willi syndrome. We have been going to him off and on for maybe 6 years. The hubby and I do not particularly care for his bedside manner. Sortof condensending (not spelled right...)A~man acts like an ANGEL with this dr. He only speaks when spoken to. If you know A...you know...that is NOT how he is. ;) Well I got this IDEA and hubby was in agreement to not give him his morning meds....I wanted the dr to SEE our issues. ENTER MOMMY GUILT. Well...turns out he ALSO got into some of his sisters RED candy (hot tamales)...he has a BAD reaction to red40....bad is a mild description. It causes him to get a little crazy...to say it in unpolitically correct terms. So I get there...(thank goodness Z girl went to work with hubby) I sit down and he wanders around a bit...then he sits down...then he stands up and sits down again...nearly knocking the table that is behind the chair over. He realizes he almost knocks it over and tries to do it again....THEN I knew "OH CRAP" so I sat beside him as there is no moving it with me sitting there. He starts looking at the other patients...most have sn's ...he started saying loudly "is that a GIRL OR A BOY MOM??" I tried to disappear into the couch. We are called back for him to be weighed/measured/ BP. He refuses to remove his shoes. Finally I get em off...then he becomes violent/aggressive getting his BP done. The dr must have heard HE tries...A~man keeps tensing his arm...bending it kicking dr....they give up.
Next we move into the examining room. Normally with this dr he will go in...sit at the too small table and play with the toddler toys...only talking when spoken too. (this child never stops talking in every other situation) Instead he starts chucking the toddler toys AT THE DR and at his glass hutch that has beach shells in it! What does the dr SAY? " does he do this during your homeschool times?" this dr not a fan of homeschooling...let me say....why did he not ask " is this how he acts at home?" grrrr. (only on rare occasions btw) Finally he says that we must leave the room and wait for him in the waiting room. The dr comes in the waiting room and ds takes off at a sprint down the hall into someone elses office...I get him.....to make an already long story a little shorter we leave promptly after with Dr S saying" will you be ok getting him to your car?" uhhh yeah. Not sure how but I did...and my back is messed up to prove it. He acted "SO OUT THERE" that on the phone to dh I said "I hope they do not call dss on me". DH's response..."well you were not the one acting out of sorts A was" (wise man:)
It sortof backfired on me...it's my fault. This extreme behavior happens only once a month or so...and rarily in public. Usually if he has red 40. I was HOPING he would see A~mans "normal" behavior- talking too much, too loud, invading personal space, distracted. Not this rarily seen behavior.
Hubby talked on the phone with him later that day...he told the dr I was afraid they were gonna call DSS on me...the dr thought that was funny...I guess he deals with situations like that a lot...I just never see them.
Oh we saw security on the way out and they man was TRYING to distract DS by pointing at the very cool train that goes around the building....A~man only asked ME...does he have a gun or a taser?...fortunately the man didn't hear what ds said after the door closed!
It continued all afternoon...he would fall asleep...wake up...rage...fall asleep. DANG the red40! and me getting the bright idea to skip a dose.
Tomorrow is a new day though...and it WILL be better. I love my little man with my whole heart by the way...and told him so... He has taught me unconditional love. Despite what I have described the kid is sooo lovable...lucky for him! ;) Let try to add a pic of my handsome boy. Please excuse the horrible grammer and spelling tonight.
Today was an appointment with A~mans Dev Ped. This guy is 'SUPPOSIDLY" an expert in Prader-willi syndrome. We have been going to him off and on for maybe 6 years. The hubby and I do not particularly care for his bedside manner. Sortof condensending (not spelled right...)A~man acts like an ANGEL with this dr. He only speaks when spoken to. If you know A...you know...that is NOT how he is. ;) Well I got this IDEA and hubby was in agreement to not give him his morning meds....I wanted the dr to SEE our issues. ENTER MOMMY GUILT. Well...turns out he ALSO got into some of his sisters RED candy (hot tamales)...he has a BAD reaction to red40....bad is a mild description. It causes him to get a little crazy...to say it in unpolitically correct terms. So I get there...(thank goodness Z girl went to work with hubby) I sit down and he wanders around a bit...then he sits down...then he stands up and sits down again...nearly knocking the table that is behind the chair over. He realizes he almost knocks it over and tries to do it again....THEN I knew "OH CRAP" so I sat beside him as there is no moving it with me sitting there. He starts looking at the other patients...most have sn's ...he started saying loudly "is that a GIRL OR A BOY MOM??" I tried to disappear into the couch. We are called back for him to be weighed/measured/ BP. He refuses to remove his shoes. Finally I get em off...then he becomes violent/aggressive getting his BP done. The dr must have heard HE tries...A~man keeps tensing his arm...bending it kicking dr....they give up.
Next we move into the examining room. Normally with this dr he will go in...sit at the too small table and play with the toddler toys...only talking when spoken too. (this child never stops talking in every other situation) Instead he starts chucking the toddler toys AT THE DR and at his glass hutch that has beach shells in it! What does the dr SAY? " does he do this during your homeschool times?" this dr not a fan of homeschooling...let me say....why did he not ask " is this how he acts at home?" grrrr. (only on rare occasions btw) Finally he says that we must leave the room and wait for him in the waiting room. The dr comes in the waiting room and ds takes off at a sprint down the hall into someone elses office...I get him.....to make an already long story a little shorter we leave promptly after with Dr S saying" will you be ok getting him to your car?" uhhh yeah. Not sure how but I did...and my back is messed up to prove it. He acted "SO OUT THERE" that on the phone to dh I said "I hope they do not call dss on me". DH's response..."well you were not the one acting out of sorts A was" (wise man:)
It sortof backfired on me...it's my fault. This extreme behavior happens only once a month or so...and rarily in public. Usually if he has red 40. I was HOPING he would see A~mans "normal" behavior- talking too much, too loud, invading personal space, distracted. Not this rarily seen behavior.
Hubby talked on the phone with him later that day...he told the dr I was afraid they were gonna call DSS on me...the dr thought that was funny...I guess he deals with situations like that a lot...I just never see them.
Oh we saw security on the way out and they man was TRYING to distract DS by pointing at the very cool train that goes around the building....A~man only asked ME...does he have a gun or a taser?...fortunately the man didn't hear what ds said after the door closed!
It continued all afternoon...he would fall asleep...wake up...rage...fall asleep. DANG the red40! and me getting the bright idea to skip a dose.
Tomorrow is a new day though...and it WILL be better. I love my little man with my whole heart by the way...and told him so... He has taught me unconditional love. Despite what I have described the kid is sooo lovable...lucky for him! ;) Let try to add a pic of my handsome boy. Please excuse the horrible grammer and spelling tonight.
Oh, you poor babes - - the both of you! Sounds like an utterly exhausting experience. Definitely making a mental note to not bring anything with Red-40 to any homeschool-related events. That stuff obviously has some "fire power", eh??
ReplyDeleteDarn that red40!!!! It sounds like if it weren't for that, your plan would have worked fine! Do you have a follow up appt? Kind of sounds like a new doc is in order though, maybe? What do you think?
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